Exploring experiences with online peer support programs for the Fragile X community

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About

The primary aim of this study was to explore experiences of people with Fragile X syndrome, Fragile X premutation carriers, and their families/carers, with Fragile X-specific online peer support programs. This study was conducted in partnership with the Fragile X Association of Australia and funded by the Melbourne Disability Institute.

Status of project: completed

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Publications

"It's especially good just to know that you're not the only one" Exploring experiences with online peer support programs for the Fragile X community.

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Fragile X qualitative study infographic

This research was designed and developed by researchers (Dr Belinda Lawford, Travis Haber, Luke Davies, Prof Kim Bennell, Prof Rana Hinman, and Prof Ann Borda) at the University of Melbourne. This project is funded by the National Health and Medical Research Council.

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