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There are a variety of useful high-quality consumer involvement resources available online. If you want to learn more about consumer involvement in health and medical research, we recommended these key resources:
PxP (Standing for ‘For Patients, By Patients’), is an international team of experienced patient and public partners. They provide resources, mentorship and community to other consumers (patient partners) in any kind of health research.
Western Australian Health Translation Network Consumer and Community Involvement Handbook is a useful resource for organisations, researchers, consumers and funders and includes a practical guide to support consumers in meaningful involvement in research.
Monash Partners have developed a suite of Consumer and Community Involvement self-paced online modules. Although they are primarily designed to support the needs of researchers and healthcare workers, anyone interested in consumer and community involvement will find them valuable. The modules provide general and practical information and strategies to meaningfully conduct and embed consumer and community involvement in research and healthcare improvement projects.
The WECAN Academy’s Patients in Publications open-access course is for consumer/patient advocates who plan to publish their own research, or who have been invited to be co-authors or peer-reviewers of journal articles. The course provides training on how to engage in publications.
Australian Clinical Trials Alliance’s Consumer Involvement and Engagement Toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials. The Toolkit contains a small but growing collection of dedicated resources for consumers and the community, that provide insights into what it means to become ‘involved’ in research and to increase awareness around the role and value of clinical trials.
National Health and Medical Research Council’s Statement on consumer and community involvement in health and medical research aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
