PanSupport - development of an experience based co-design, supportive care app with and for people affected by pancreatic cancer
|Professor Mei Krishnasamayfirstname.lastname@example.org||View page|
Each year in Australia approximately 3,100 people are diagnosed with pancreatic cancer. Pancreatic cancer has the lowest survival of all cancer types worldwide with a death-to-incidence ratio approaching one. Even with promising response to initial treatment, the recurrence rate is high with a median survival of five months. Almost 60% of patients present with metastatic disease. Despite the poor prognosis and considerable symptom burden associated with the disease, there has been little investigation of the supportive care needs of patients and/or their carers, limiting the ability to develop resources targeted to their specific needs. But a study funded by Cancer Australia as part of their Supporting People with Cancer grant initiative, will deliver a supportive care app co-designed with people affected by pancreatic cancer, to optimise access to best-practice self-management information and tools to support wellbeing, irrespective of where people live. The app will be the first dedicated app of its kind in Australia, delivering a new supportive care resource to a community of people affected by one of the most devastating of all cancers.
- Prof Mei Krishnasamy, Chair in Cancer Nursing, Department of Nursing & Centre for Cancer Research, University of Melbourne; VCCC Research and Education Lead – Cancer Nursing (Principal Investigator)
- A/Prof Soumitri Varadarajan, Deputy Dean - Industrial and Interior Design, School of Architecture and Design, RMIT University
- Dr Mehrdad Nikfarjam,Founder and Board Member, The Pancare Foundation
- Pancare Foundation Consumer Advisors (TBC)
- Julie Cairns, General Manager Cancer Services, Olivia Newton-John Cancer, Wellness and Research Centre (ONJ), Austin Health
- Dr Anna Boltong, Head of Cancer Information and Support Service, Cancer Council Victoria
- Dr Michael Michael, Consultant Medical Oncologist, Upper GI Service, Peter MacCallum Cancer Centre
- Megan Rogers, Advanced Practice Nurse, Upper GI Service, Peter MacCallum Cancer Centre
- Dr Sibilah Breen, Senior Research Fellow, Centre for Palliative Care, St Vincent’s Hospital, Victoria
- Alison Hocking, Head of Social Work, Royal Melbourne Hospital
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